Mucopolysaccharidosis Newborn Screening Meeting

 

MPS NBS Save the Date
Join Us April 10-12, 2023

The MPS Center at the University of Minnesota will be hosting the 2023 MPS NBS Meeting to share the latest information on mucopolysaccharidosis and the importance of early detection through newborn screening. Early detection is critical to saving lives from the rapidly progressing rare diseases known as MPS I (Hurler Syndrome) and MPS II (Hunter Syndrome), and other subtypes. 

Agenda (Draft)

Subject to change without notice.

Monday, April 10, 2023

  • Social Hour and Dinner

Tuesday, April 11, 2023

  • Session 1 - Overview of MPS and NBS
  • Session 2 - NBS: A deeper dive
  • Lunch
  • Session 3 - Treatment initiation and approaches

 Wednesday April 12, 2023

  • Session 4 - NBS: Result notification and follow up
  • Session 5 - Treatment Implementation, Panel
  • Lunch
  • Session 6 - Screening for other MPS types

 

Registration

Details on Registration Coming Soon. 

Audience: 

  • Families

  • Healthcare Professionals

  • Medical Industry Professionals

  • Physicians & Researchers

  • Public Health Professionals

  • Residents / Fellows / Students

To become a corporate sponsor, to receive information for speakers or poster presenters, or to be added to the registration notification list, please contact Sarah Jutila Peterson.

McNamara Building
Location

 University of Minnesota McNamara Alumni Center

200 SE Oak St, Minneapolis, MN 55455

Hotels near McNamara Alumni Center
Hotel

A block of rooms will be made available in 2023 for the Graduate Hotel, on campus less than two blocks from the event.

Graduate Minneapolis

615 Washington Ave SE, Minneapolis, MN 55414

1-612-379-8888

Presenters

 

Hosts

Matthew Ellinwood, National MPS Society

Terri Klein, National MPS Society

Paul Orchard, University of Minnesota Pediatric BMT&CT

 

Featured Presenters

Coming Soon!

Thank You Sponsors

APHL

National MPS Society

...more coming soon.

Become a Sponsor