XPFSG Medical Conference 2022
Xeroderma Pigmentosum - Also known as XP, is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, XP can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.
The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family support group strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family grants for UV protective equipment and travel assistance for attending the annual XP national convention.
The Institute on the Biology of Aging and Metabolism at the University of Minnesota is hosting the next XPFSG Medical Conference at the Graduate Hotel in Minneapolis in November of 2022. The Board of Directors for the XPFSG will invite their entire XP network to attend the conference and participate in a clinical study. Families will travel from all over the world to be a part of this event. There will be daily talks given by experts in the field and attendees will have the chance to learn about many resources available to them.