Ways to Help
Individuals and families are often asking what they can do to help work towards a cure for muscular dystrophy. There are several different options you can consider.
Participate in Research
This is a very exciting time in muscular dystrophy research with several new and promising treatment strategies. This progress was made possible by individual's participation in research.
There are national registries for several different types of muscular dystrophy. Some are listed below:
- Facioscapulohumeral Muscular Dystrophy (FSHD)
- Myotonic Dystrophy
- Dystrophinopathies (Duchenne and Becker Muscular dystrophy)
- Charcot-Marie-tooth (CMT)
- LGMD registry & patient network through the SPEAK Foundation
There are two national resources for clinical trials:
Are you interested in working with children or adults with muscular dystrophy? The Wellstone MD Center has various community programs throughout the year that serve our neuromuscular community members. We are always looking for volunteers for Family Camp, which is an opportunity to play and work with children living with MD, as well as their family members. This is a special opportuntity for those looking into genetics, physical therapy, social work or other health/medical related fields. If you are interested in volunteering, please contact Jenny at firstname.lastname@example.org or (612) 626-4823.
The mission of the MD Center is made possible through generous donors and annual sponsors. Through this important funding, we are able to support ground-breaking basic science research, community support programs, innovative clinical research studies, and undergraduate student scholarships.
Make a Donation
You can have an immediate impact on programs such as the Wellstone Muscular Dystrophy Center by making a donation.
We always need your help in supporting our clinical, educational and research activities, and encourage you to send your gifts to the University of Minnesota Foundation.