Julie Eisengart, PhD, LP
Associate Professor, Department of Pediatrics
Contact Info
Associate Professor, Department of Pediatrics
Faculty Member, Division of Clinical Behavioral Neuroscience
Director, Neurodevelopmental Program in Rare Disease
Faculty Member, Center for Neurobehavioral Development
Team Member, Mucopolysaccharidosis (MPS) Center
Team Member, Leukodystrophy Center
Pediatric Neuropsychologist
Postdoctoral Fellowship, Pediatric Neuropsychology, University of Minnesota Medical School, Minneapolis, MN
PhD, Clinical Psychology, Northwestern University Feinberg School of Medicine, Chicago, IL
MA, Developmental Psychology, University of Illinois Urbana-Champaign, Champaign, IL
Summary
Dr. Julie Eisengart is an Associate Professor in the Department of Pediatrics and the Director of the Neurodevelopmental Program in Rare Disease. As a pediatric neuropsychologist, she specializes in rare neurodegenerative disorders of childhood as well as a range of complex medical conditions, and she works with patients from infancy to young adulthood. Her clinical interests include assessing the strengths and needs of children affected by complex medical diagnoses, throughout their medical journeys, to optimize whole-child, whole-family care and supports. As a clinical supervisor and mentor, she values her role in training future psychologists and supporting their development into independent, balanced professionals. Dr. Eisengart’s research focuses on the changing relationships between brain structure, biochemical abnormalities, and brain function in rare disease, with the goal of predicting outcomes and improving supportive planning. She has been heavily involved in examining outcomes of early diagnosis, newborn screening, and/or novel therapies for rare disease. Her research extends to defining and measuring aspects of disease that are under-represented in the clinical and research communities but are important and meaningful to patients and their families, such as neurobehavioral symptoms and the caregiver lived experience.
Awards & Recognition
Research
Research Summary/Interests
- Natural Histories and Treatment Outcomes of Rare Diseases Involving the Central Nervous System
- Lysosomal Storage Disorders
Clinical
Clinics
Pediatric Specialty Care-Discovery Clinic
Clinical Interests
Rare Genetic Diseases of Childhood; Storage and Metabolic Disorders; Pre- and Post-Transplant Evaluation; Prenatal and Perinatal Injury; Traumatic Brain Injury; Complex Medical Involvement
Clinical Experience Statement
Community Engagement
- Member, Supervisory Committee of the Scientific Advisory Board for the National MPS Society USA
- Advisor, Technical Expert Panel for the Evidence Review Group (ERG) for the U.S. Secretary of Health and Human Services Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC), to consider expansion of the Recommended Uniform Screening Panel (RUSP) to include Mucopolysaccharidosis II (MPS II)
- Adviser, Rare Disease Subcommittee of the Patient-Reported Outcome Consortium at the Critical Path Institute
- Adviser to the Minnesota Department of Health on implementation of newborn screening for MPS I and other rare disorders